been into Weston Park today and been told that my surgery to remove my cancer tumour has been brought forward 8 weeks and all but 5 of my scheduled radiotherapy treatments have been cancelled due to Covid19 This is because they want to get as many surgical procedure done now encase they are unable to do them at a later stage, which on one hand is great as the tumour is removed earlier but the radiotherapy was there to reduce the size and now with this not happening has increased the risks not to mention my stress levels through the roof.
Oh... not sure whether this is good or not - I assume the ideal was to reduce the size first but having the op early and missing 5 doses of radiotherapy does sound better in some ways - really hope it goes well and the operation is a success
Think he means he's only having 5 instead of the full course originally prescribed. My wife had 20 odd after surgery and chemo and these were completed in just 4 and a half weeks. The operation will be slightly more invasive as a consequence I'm guessing. Anyway good luck and hope everything turns out ok
Thanks Farnham, yeah that was the idea, I'm now missing 20 sessions if radiotherapy in total, the main risk now is how close or how much of the bone they are, which leads on to how my recovery and disabilities are
I'm no expert but for the best outcome following the removal of the tumour you need the radiotherapy course. Can you challenge the decision not to go ahead with the full radiotherapy course? And the really difficult question is what is the likely consequence of the removal of the tumour without the following full radiotherapy course. It may be that the reduced number of radiotherapy sessions will keep things in check whilst this Corona Virus is taking up so much resource and you can have the remaining radiotherapy sessions later?? There is a Macmillan Nurse Helpline (google it) and they may be able to offer some advice. It wont do any harm to at least discuss things with them.
They haven't mentioned treatment after surgery so presume that's still the case, my big worry that at the start of the pandemic cancers patients were thrown under the bus so to speak in favour of resources being diverted to covid patients, I just this isn't the case here It's all been a bit of a whirlwind today so not had chance to speak to anybody like McMillan yet
I assumed the radiotherapy happens after the surgery ?? Macmillan Nurses 0800 640 9499 (office hours) - ask them what the best treatment is for someone with your type of cancer re number of radiotherapy sessions etc and (easy for me to say this) agitate to get the best treatment for yourself. There are rules about how soon a patient with cancer should be seen and what treatment should be offered. Ask the Macmillan Nurses about this. Resources have been diverted to treat covid patients - operations postponed, bed reserved for covid patients etc. I think a lot of people have been thrown under the bus A minor example - my young nephew - broke his arm - pot on his arm due to be removed - dr phoned his father and asked father to somehow get the pot off at home. Easy for me to say this but get
Good luck with your Op and I wish you a speedy recovery. I don't know how big your tumor is or where it's located. The guitarist Wilko Johnson had an enormous tumor taken out by pioneering surgery together with pancreas spleen and part of his stomach. Stay strong!